This post as well as all the comments have been SO helpful!! We have been seeking out the answers to my 4 yr old daughters mystery illness. After many pediatric visits as well as specialist visits we are now moving forward with genetic testing to rule out and diagnose what particular pfs she has. I am curious as to what specialist everyone has had the best luck with? We have been reffered to immunologist, rheumatologist and neurologist..and assuming we have to get a tonsillectomy that would be a ENT? Is that right? Just curious what specialist has been the most helpful to everyone else.
Thank you this is helpful, but leaves many questions unanswered, so what of the person who first was diagnosed with RA then develops Osteoarthritis and despite -ve RA factor for many years continues to see deterioration and caught between moving to relieve morning stiffness and overdoing it and getting overuse pain from Osteo and then the unexplained fusion of joints such as the Elbow. Knee replacement takes care of one joint as does Hip but there seems no answer for the Elbow…..Hope someone is looking into that. Confused in Radium Hot Springs CA